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	<title>Comments for The Queen of Optimism</title>
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	<link>http://medicalpuzzle.com</link>
	<description>The life and times of one woman with many diagnosed and not yet diagnosed medical problems that are autoimmune, neuromuscular, and/or chronic.</description>
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		<title>Comment on Today, The Only One by sickmomma</title>
		<link>http://medicalpuzzle.com/2012/01/28/today-the-only-one/#comment-1949</link>
		<dc:creator><![CDATA[sickmomma]]></dc:creator>
		<pubDate>Tue, 31 Jan 2012 22:06:16 +0000</pubDate>
		<guid isPermaLink="false">http://queenofoptimism.wordpress.com/?p=1634#comment-1949</guid>
		<description><![CDATA[Yikes! I thought I posted this response on Sunday, but here it is Tuesday and I found it on a browser tab looking like I never hit post. Sorry it&#039;s so late. I hope you&#039;ll share how the meeting went and what, if anything, you found tech-wise to help.

--------------
One relatively low-tech thing that might be (slightly) helpful is taping the meeting. It won&#039;t help *during* the meeting, but if there are details you weren&#039;t sure you fully caught, it can be helpful to have as backup to make sure you note all action points or whatever. Although if he&#039;s really badly a mumbler, sometimes that won&#039;t even work. But it might be worth a try. One of my favorite reporter tricks also was at the end of meetings/interviews, to let the person know I might have some followup questions once I get underway, and is there an email address they prefer me to use for those questions. 

My mom is deaf and got cochlear implants about a decade or so ago. Back before she got it (and probably still since they&#039;re not perfect), she always made a point of starting important conversations with people by telling them that she was hard of hearing (or later, as things progressed, deaf) and she needed people to speak up, face her when they talk and enunciate clearly. I understand that might be hard to do when talking to a VIP, but she also had a trick with humor when she would occasionally tell them what she thought she heard (&quot;Excuse me, I know I&#039;m mishearing, unless you really did just say the pink elephant would waltz in here soon? Would you please repeat what you just said, and speak a little louder/slower/etc?&quot;) 

I do the nervous talking thing too. Would it help to treat those nosy questions as though you&#039;re testifying in a courtroom and need to remember to answer ONLY the question asked, followed by a quick change of subject:

Q: Have you always been hard of hearing? 
A: Yes, most of my life. Now, I&#039;m really grateful to you for making the time to talk with me about XYZ. What are your thoughts about XYZ?

I suspect it&#039;s one of those things that&#039;s WAY easier to suggest than to put into practice. I have mixed success at it if I practice ahead of time and remind myself to do so before the meeting starts. In my case, I think mixed success is better than an epic fail. :)

Ok, I&#039;ve written too much. But I hope you find/found something to help in time for the meeting and that it all goes smoothly!

(p.s. Can I just say that I think it&#039;s appalling that &quot;bargain&quot; hearing aids cost $2,500 and are rarely if ever covered by insurance?)]]></description>
		<content:encoded><![CDATA[<p>Yikes! I thought I posted this response on Sunday, but here it is Tuesday and I found it on a browser tab looking like I never hit post. Sorry it&#8217;s so late. I hope you&#8217;ll share how the meeting went and what, if anything, you found tech-wise to help.</p>
<p>&#8212;&#8212;&#8212;&#8212;&#8211;<br />
One relatively low-tech thing that might be (slightly) helpful is taping the meeting. It won&#8217;t help *during* the meeting, but if there are details you weren&#8217;t sure you fully caught, it can be helpful to have as backup to make sure you note all action points or whatever. Although if he&#8217;s really badly a mumbler, sometimes that won&#8217;t even work. But it might be worth a try. One of my favorite reporter tricks also was at the end of meetings/interviews, to let the person know I might have some followup questions once I get underway, and is there an email address they prefer me to use for those questions. </p>
<p>My mom is deaf and got cochlear implants about a decade or so ago. Back before she got it (and probably still since they&#8217;re not perfect), she always made a point of starting important conversations with people by telling them that she was hard of hearing (or later, as things progressed, deaf) and she needed people to speak up, face her when they talk and enunciate clearly. I understand that might be hard to do when talking to a VIP, but she also had a trick with humor when she would occasionally tell them what she thought she heard (&#8220;Excuse me, I know I&#8217;m mishearing, unless you really did just say the pink elephant would waltz in here soon? Would you please repeat what you just said, and speak a little louder/slower/etc?&#8221;) </p>
<p>I do the nervous talking thing too. Would it help to treat those nosy questions as though you&#8217;re testifying in a courtroom and need to remember to answer ONLY the question asked, followed by a quick change of subject:</p>
<p>Q: Have you always been hard of hearing?<br />
A: Yes, most of my life. Now, I&#8217;m really grateful to you for making the time to talk with me about XYZ. What are your thoughts about XYZ?</p>
<p>I suspect it&#8217;s one of those things that&#8217;s WAY easier to suggest than to put into practice. I have mixed success at it if I practice ahead of time and remind myself to do so before the meeting starts. In my case, I think mixed success is better than an epic fail. <img src='http://s0.wp.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
<p>Ok, I&#8217;ve written too much. But I hope you find/found something to help in time for the meeting and that it all goes smoothly!</p>
<p>(p.s. Can I just say that I think it&#8217;s appalling that &#8220;bargain&#8221; hearing aids cost $2,500 and are rarely if ever covered by insurance?)</p>
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		<title>Comment on Today, The Only One by dyspatient</title>
		<link>http://medicalpuzzle.com/2012/01/28/today-the-only-one/#comment-1948</link>
		<dc:creator><![CDATA[dyspatient]]></dc:creator>
		<pubDate>Mon, 30 Jan 2012 11:45:32 +0000</pubDate>
		<guid isPermaLink="false">http://queenofoptimism.wordpress.com/?p=1634#comment-1948</guid>
		<description><![CDATA[I am a clear speaker, but I don&#039;t always project my voice.  I know, for example, that I tend to speak more quietly when I&#039;m not feeling good (hard to want my voice booming around in my head when I have a migraine).  

HR rep did not have tips for managing the TMI/snub line.  That there could be a call for such a thing was a revelation to her.  She took it well, got it I mean, but didn&#039;t have a suggestion for how to deal with it.  I guess that&#039;s what therapy is for.  ;)

I hope you find a solution that works for you.  I&#039;m still in shock about the prices of these devices.]]></description>
		<content:encoded><![CDATA[<p>I am a clear speaker, but I don&#8217;t always project my voice.  I know, for example, that I tend to speak more quietly when I&#8217;m not feeling good (hard to want my voice booming around in my head when I have a migraine).  </p>
<p>HR rep did not have tips for managing the TMI/snub line.  That there could be a call for such a thing was a revelation to her.  She took it well, got it I mean, but didn&#8217;t have a suggestion for how to deal with it.  I guess that&#8217;s what therapy is for.  <img src='http://s1.wp.com/wp-includes/images/smilies/icon_wink.gif' alt=';)' class='wp-smiley' /> </p>
<p>I hope you find a solution that works for you.  I&#8217;m still in shock about the prices of these devices.</p>
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		<title>Comment on Today, The Only One by queenofoptimism</title>
		<link>http://medicalpuzzle.com/2012/01/28/today-the-only-one/#comment-1945</link>
		<dc:creator><![CDATA[queenofoptimism]]></dc:creator>
		<pubDate>Sun, 29 Jan 2012 15:09:35 +0000</pubDate>
		<guid isPermaLink="false">http://queenofoptimism.wordpress.com/?p=1634#comment-1945</guid>
		<description><![CDATA[I want to hear more about your HR meeting. Plus, did HR give tips for how to manage the tmi/snub line?

I&#039;m surprised that your position hasn&#039;t naturally caused you to be a clear speake - you must piss off a lot of HOH folks ;).  I do the same as your boss!  And, at times, ibeg ppl to speak up.
Thanks for the wishes of luck and for checking out ES here. Hope your weekend is comfy]]></description>
		<content:encoded><![CDATA[<p>I want to hear more about your HR meeting. Plus, did HR give tips for how to manage the tmi/snub line?</p>
<p>I&#8217;m surprised that your position hasn&#8217;t naturally caused you to be a clear speake &#8211; you must piss off a lot of HOH folks <img src='http://s1.wp.com/wp-includes/images/smilies/icon_wink.gif' alt=';)' class='wp-smiley' /> .  I do the same as your boss!  And, at times, ibeg ppl to speak up.<br />
Thanks for the wishes of luck and for checking out ES here. Hope your weekend is comfy</p>
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		<title>Comment on More than this by queenofoptimism</title>
		<link>http://medicalpuzzle.com/2012/01/25/more-than-this/#comment-1944</link>
		<dc:creator><![CDATA[queenofoptimism]]></dc:creator>
		<pubDate>Sun, 29 Jan 2012 14:54:47 +0000</pubDate>
		<guid isPermaLink="false">https://queenofoptimism.wordpress.com/?p=1630#comment-1944</guid>
		<description><![CDATA[You are so sweet - my love for your blog is immense! it&#039;s so great to *see* you.  I&#039;m so fortunate to have developed these awesome friendships because of my med stuff.  Perhaps we should start writing fiction about our illnesses.  You know, how awesome it is when people minimize our problems, etc.  Seriously though Sickmomma, you&#039;re a writer.  I hope you have an outlet for your talents!!  - hugs!!!]]></description>
		<content:encoded><![CDATA[<p>You are so sweet &#8211; my love for your blog is immense! it&#8217;s so great to *see* you.  I&#8217;m so fortunate to have developed these awesome friendships because of my med stuff.  Perhaps we should start writing fiction about our illnesses.  You know, how awesome it is when people minimize our problems, etc.  Seriously though Sickmomma, you&#8217;re a writer.  I hope you have an outlet for your talents!!  &#8211; hugs!!!</p>
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		<title>Comment on Today, The Only One by dyspatient</title>
		<link>http://medicalpuzzle.com/2012/01/28/today-the-only-one/#comment-1943</link>
		<dc:creator><![CDATA[dyspatient]]></dc:creator>
		<pubDate>Sun, 29 Jan 2012 14:37:54 +0000</pubDate>
		<guid isPermaLink="false">http://queenofoptimism.wordpress.com/?p=1634#comment-1943</guid>
		<description><![CDATA[iSense micro looks good (yeah, still has an over ear earpiece, but it is small) but WOW is it pricey!  Our easter seals in MA has a great assistive/adaptive technology program, including device demonstration and loans - unfortunately, I took a quick stroll through the easter seals site for your state and it does not seem to have (readily findable) services like this.  I think your idea of contacting an advocacy group is an excellent one.

My boss is HOH and I am mumbly sometimes.  He says things like &quot;I caught about 10% of that...&quot; or touches his fingers to his ear (sort of a modification and  reduced version of the old cupping ear with hand gesture).  It helps me remember to speak the hell up.  I do still slide into mumbles sometimes, but overall I am learning to adapt my voice to lecture mode when I talk to him.  

As for the small talk and the TMI inducing attention...this exact thing came up at my meeting with HR this week.  It&#039;s tough NOT to over-disclose when coworkers ask about things like this, because the other options seem to be anti-social.  As in &quot;So have you been hard of hearing your whole life?&quot;  &quot;You know, I&#039;d rather not talk about it...&quot;  (cue fail horns as coworker feels socially snubbed).  

My goal is to find ways to stop those conversations with a bit more skill than I currently employ.  I&#039;ll let you know how it goes. ;p

Good luck with Mr. Mumbles.]]></description>
		<content:encoded><![CDATA[<p>iSense micro looks good (yeah, still has an over ear earpiece, but it is small) but WOW is it pricey!  Our easter seals in MA has a great assistive/adaptive technology program, including device demonstration and loans &#8211; unfortunately, I took a quick stroll through the easter seals site for your state and it does not seem to have (readily findable) services like this.  I think your idea of contacting an advocacy group is an excellent one.</p>
<p>My boss is HOH and I am mumbly sometimes.  He says things like &#8220;I caught about 10% of that&#8230;&#8221; or touches his fingers to his ear (sort of a modification and  reduced version of the old cupping ear with hand gesture).  It helps me remember to speak the hell up.  I do still slide into mumbles sometimes, but overall I am learning to adapt my voice to lecture mode when I talk to him.  </p>
<p>As for the small talk and the TMI inducing attention&#8230;this exact thing came up at my meeting with HR this week.  It&#8217;s tough NOT to over-disclose when coworkers ask about things like this, because the other options seem to be anti-social.  As in &#8220;So have you been hard of hearing your whole life?&#8221;  &#8220;You know, I&#8217;d rather not talk about it&#8230;&#8221;  (cue fail horns as coworker feels socially snubbed).  </p>
<p>My goal is to find ways to stop those conversations with a bit more skill than I currently employ.  I&#8217;ll let you know how it goes. ;p</p>
<p>Good luck with Mr. Mumbles.</p>
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		<title>Comment on More than this by sickmomma</title>
		<link>http://medicalpuzzle.com/2012/01/25/more-than-this/#comment-1941</link>
		<dc:creator><![CDATA[sickmomma]]></dc:creator>
		<pubDate>Sun, 29 Jan 2012 00:30:59 +0000</pubDate>
		<guid isPermaLink="false">https://queenofoptimism.wordpress.com/?p=1630#comment-1941</guid>
		<description><![CDATA[I love your blog immensely too! :)

I know how you feel. I often feel like I have nothing to say on my blog anymore, except more of the same issues that I&#039;ve written about too many times before. I feel like I&#039;ve given up (as have my doctors) on figuring out what&#039;s wrong with me so I don&#039;t have progress to report. It&#039;s hard being a medical mystery.]]></description>
		<content:encoded><![CDATA[<p>I love your blog immensely too! <img src='http://s0.wp.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
<p>I know how you feel. I often feel like I have nothing to say on my blog anymore, except more of the same issues that I&#8217;ve written about too many times before. I feel like I&#8217;ve given up (as have my doctors) on figuring out what&#8217;s wrong with me so I don&#8217;t have progress to report. It&#8217;s hard being a medical mystery.</p>
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		<title>Comment on More than this by queenofoptimism</title>
		<link>http://medicalpuzzle.com/2012/01/25/more-than-this/#comment-1940</link>
		<dc:creator><![CDATA[queenofoptimism]]></dc:creator>
		<pubDate>Sat, 28 Jan 2012 16:27:40 +0000</pubDate>
		<guid isPermaLink="false">https://queenofoptimism.wordpress.com/?p=1630#comment-1940</guid>
		<description><![CDATA[I appreciate you and your blog more immensely! ;)  

Thanks about the grant - it was successfully submitted and at this point, that&#039;s the most important part for me.  Get some comfort this weekend!]]></description>
		<content:encoded><![CDATA[<p>I appreciate you and your blog more immensely! <img src='http://s1.wp.com/wp-includes/images/smilies/icon_wink.gif' alt=';)' class='wp-smiley' />   </p>
<p>Thanks about the grant &#8211; it was successfully submitted and at this point, that&#8217;s the most important part for me.  Get some comfort this weekend!</p>
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		<title>Comment on More than this by dyspatient</title>
		<link>http://medicalpuzzle.com/2012/01/25/more-than-this/#comment-1935</link>
		<dc:creator><![CDATA[dyspatient]]></dc:creator>
		<pubDate>Thu, 26 Jan 2012 10:31:35 +0000</pubDate>
		<guid isPermaLink="false">https://queenofoptimism.wordpress.com/?p=1630#comment-1935</guid>
		<description><![CDATA[I love and appreciate your blog immensely!  

I hope your grant proposal writing goes well.  I hope everybody (including yours) is cooperative.]]></description>
		<content:encoded><![CDATA[<p>I love and appreciate your blog immensely!  </p>
<p>I hope your grant proposal writing goes well.  I hope everybody (including yours) is cooperative.</p>
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		<title>Comment on A Person With Disabilities as Job Seeker by arasevera</title>
		<link>http://medicalpuzzle.com/2011/04/27/a-person-with-disabilities-as-job-seeker/#comment-1934</link>
		<dc:creator><![CDATA[arasevera]]></dc:creator>
		<pubDate>Thu, 26 Jan 2012 04:01:19 +0000</pubDate>
		<guid isPermaLink="false">http://medicalpuzzle.com/?p=1382#comment-1934</guid>
		<description><![CDATA[I just had to respond. I am skimming through your blogs posts, I am tired but I want to read more and more. My God, you and have soooooo much in common. Different &quot;disabilities,&quot; but oh so similar experiences. 
I am facing a job issue myself - I was pushed out of the biotech field due to the side effects of the meds I was on, plus the sx of my chronic health issues made matters worse. The meds that made me feel better, but made me slower-the anti-Lori. The moodiness created by some if them (hello prednisone) didn&#039;t help either. After being unduly harassed by coworkers and one of the company co-owners, I left. I tried temp work, writing up reports for non-English speaking scientists to be submitted to the FDA. That lasted 4 months...several factors played into my choice to leave this pretty decent temp position. The one choose to highlight was the declining health of my Mom. She passed the day after I left that job. That was in February, 2009. Being blessed (or lucky) with a wonderful, working husband who wanted a happy, well wife instead of a crazed, sick one, made it clear I should make ME a priority and stay home and pursue some creative interests. 
So I did. Being eligible for SSDI helped as well, although navigating THAT system can drive one to the brink of insanity. I figured that I have worked more than one job at a time for 30 years and paid heartily into the system, so therefore, I deserved it. I&#039;ll be damned if illegal immigrants scam the system, and the drug-addled, chronic fatigue, ADD fakers can off the system without ever working a day in their lives, then I am going to grab my share before this country gets over run with liberals &quot;taking care&quot; of everyone but the hard-working and well-deserving citizens of this country. But, I digress, (I blame it on the chronic pain caused by a system that will give handouts to everyone but me, so it seems...)
Now, we are in a financial bind, such that I must seek employment in the professional field. No more retail, receptionist or night school teaching jobs for me.
How do I return to a field that shoved me aside?
I tried recruiters. Oh, they are soooo happy to help, until they send me out to meet their clients, who note that I am not 25, that i am not here looking for a sponsor for an H1-B visa, that I was born here and look the part. I went on 66 interviews set up by recruiters. Among the reasons why I was rejected for positions was: I was older than the managers and they did not feel comfortable with me; I would be working with Asians(their word) and it would be helpful if I understood them (in other words, I am not Chinese or Indian, therefore I am &quot;less than&quot;); my past concerned them - I had changed careers and did not seem dedicated (WTF? I am in my 40&#039;s and I think I am entitled to change careers if given the chance); the position is &quot;usually filled by pre-med students who use the position as a stepping stone to medical school.&quot; That one floored me. Why would they choose a person who doesn&#039;t want to commit? Because, they are not supposed to say, you are too old and went to a public school and aren&#039;t programmed to work in the same way Asians are. 
I am not concocting these things out of paranoia. These were conversations I had with recruiters, &#039;off the record.&quot; 
The last recruiter I spoke with told me to go back to my old career (I was a senior litigation paralegal that made lots of $$$ but disliked the law firm environment.) Really? I am that hopeless? I spent all that time busting my tush volunteering for ANY lab position I could get at UMASS, while going through the worst pain of my life, while spending most of my retirement savings, and STILL excelling in my classes? 
So, what do I do? 
What do any of us do - by &#039;us,&quot; I mean those over 30, suffering from weird and undiagnosible but tangible medical conditions, with skill sets and life experience that most of our would-be bosses will ever have...
You have my empathy. I just wish I had answers for us all. 
Lori]]></description>
		<content:encoded><![CDATA[<p>I just had to respond. I am skimming through your blogs posts, I am tired but I want to read more and more. My God, you and have soooooo much in common. Different &#8220;disabilities,&#8221; but oh so similar experiences.<br />
I am facing a job issue myself &#8211; I was pushed out of the biotech field due to the side effects of the meds I was on, plus the sx of my chronic health issues made matters worse. The meds that made me feel better, but made me slower-the anti-Lori. The moodiness created by some if them (hello prednisone) didn&#8217;t help either. After being unduly harassed by coworkers and one of the company co-owners, I left. I tried temp work, writing up reports for non-English speaking scientists to be submitted to the FDA. That lasted 4 months&#8230;several factors played into my choice to leave this pretty decent temp position. The one choose to highlight was the declining health of my Mom. She passed the day after I left that job. That was in February, 2009. Being blessed (or lucky) with a wonderful, working husband who wanted a happy, well wife instead of a crazed, sick one, made it clear I should make ME a priority and stay home and pursue some creative interests.<br />
So I did. Being eligible for SSDI helped as well, although navigating THAT system can drive one to the brink of insanity. I figured that I have worked more than one job at a time for 30 years and paid heartily into the system, so therefore, I deserved it. I&#8217;ll be damned if illegal immigrants scam the system, and the drug-addled, chronic fatigue, ADD fakers can off the system without ever working a day in their lives, then I am going to grab my share before this country gets over run with liberals &#8220;taking care&#8221; of everyone but the hard-working and well-deserving citizens of this country. But, I digress, (I blame it on the chronic pain caused by a system that will give handouts to everyone but me, so it seems&#8230;)<br />
Now, we are in a financial bind, such that I must seek employment in the professional field. No more retail, receptionist or night school teaching jobs for me.<br />
How do I return to a field that shoved me aside?<br />
I tried recruiters. Oh, they are soooo happy to help, until they send me out to meet their clients, who note that I am not 25, that i am not here looking for a sponsor for an H1-B visa, that I was born here and look the part. I went on 66 interviews set up by recruiters. Among the reasons why I was rejected for positions was: I was older than the managers and they did not feel comfortable with me; I would be working with Asians(their word) and it would be helpful if I understood them (in other words, I am not Chinese or Indian, therefore I am &#8220;less than&#8221;); my past concerned them &#8211; I had changed careers and did not seem dedicated (WTF? I am in my 40&#8242;s and I think I am entitled to change careers if given the chance); the position is &#8220;usually filled by pre-med students who use the position as a stepping stone to medical school.&#8221; That one floored me. Why would they choose a person who doesn&#8217;t want to commit? Because, they are not supposed to say, you are too old and went to a public school and aren&#8217;t programmed to work in the same way Asians are.<br />
I am not concocting these things out of paranoia. These were conversations I had with recruiters, &#8216;off the record.&#8221;<br />
The last recruiter I spoke with told me to go back to my old career (I was a senior litigation paralegal that made lots of $$$ but disliked the law firm environment.) Really? I am that hopeless? I spent all that time busting my tush volunteering for ANY lab position I could get at UMASS, while going through the worst pain of my life, while spending most of my retirement savings, and STILL excelling in my classes?<br />
So, what do I do?<br />
What do any of us do &#8211; by &#8216;us,&#8221; I mean those over 30, suffering from weird and undiagnosible but tangible medical conditions, with skill sets and life experience that most of our would-be bosses will ever have&#8230;<br />
You have my empathy. I just wish I had answers for us all.<br />
Lori</p>
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		<title>Comment on The 2011 Take on Optimism by Kay</title>
		<link>http://medicalpuzzle.com/2011/12/27/the-2011-take-on-optimism/#comment-1933</link>
		<dc:creator><![CDATA[Kay]]></dc:creator>
		<pubDate>Tue, 24 Jan 2012 15:51:37 +0000</pubDate>
		<guid isPermaLink="false">http://medicalpuzzle.com/?p=1609#comment-1933</guid>
		<description><![CDATA[I am a pessimist most of the time, so often paralyzed into inaction in my life. I do not like it, often feeling as though I will never get out of the box I am in. Then again, do I want to? Depressed, confused, undiagnosed pain that is possibly fibro, in midlife. Yet I see pleasure in little things. There is great beauty in the world I don&#039;t think things are as bad as my mind makes them. Really a pessimistic optimist maybe? Whatever, it is what it is. To all, take care of yourself and enjoy the sun when it shines.]]></description>
		<content:encoded><![CDATA[<p>I am a pessimist most of the time, so often paralyzed into inaction in my life. I do not like it, often feeling as though I will never get out of the box I am in. Then again, do I want to? Depressed, confused, undiagnosed pain that is possibly fibro, in midlife. Yet I see pleasure in little things. There is great beauty in the world I don&#8217;t think things are as bad as my mind makes them. Really a pessimistic optimist maybe? Whatever, it is what it is. To all, take care of yourself and enjoy the sun when it shines.</p>
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