I believe that with a fairly high level of certainty that I am accurate when I say that I am doing something no one else in the world will do today. I could be wrong because I’m out of touch with the whole entire world, which is true. However, I refuse to accept that my [...]
Filed under: Uncategorized | Tagged: disability, hard of hearing, quality of life, living with disabilities, hearing loss, hoh, living with deafnes, nervous talking | 4 Comments »
That’s the problem. I’ve entered in Anger phase in full force and I’m stuck like Gorilla Glue. I’m referring to Kübler-Ross / Five Stages of Grief. Though the model was first described as a process of emotions for coping with dying, Kübler-Ross has extended the model to cover grief for any life-altering event including illness [...]
Filed under: In search of happiness, Mental Health, Uncategorized | 3 Comments »
I hear people describe themselves by the names others can call them: Wife…Mother..Sister…Daughter…Cousin…Niece…Daughter-in-law…Sister-in-Law. When any of the above roles we have are strained, should we look for comfort in one of the many other roles we have? Boss…co-worker…room parent…patient…driver…public radio listener…business book reader…online shopper…bill payer…tax payer…disability advocate…relationship ruiner… I want to continue this list but [...]
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On February 7, 2009, I started this blog with a post about abnormal redness and other symptoms in my left eye. I woke up on Monday, December 12 with a dark red right eye. The redness comes with stabbing pain, blurry vision, tearing, and puffiness. See photo, right. For lack of knowing what else to [...]
Filed under: Uncategorized | Tagged: abnormal redness, doctor patient relationship, endocrinologist, eye clinic, eye redness, neuro ophthalmologist, pain management, Wego health | 7 Comments »
My goal was to complete the Exit interview (mentioned in my previous post) right away so that I could put it in the past and keep moving onward. After all, I left my previous employer 4.5 months ago. However, I have not gotten very far on the questions. Have any ideas for how I could [...]
Filed under: Disability, Health, Uncategorized | 5 Comments »
Former employer called. Wants me to complete Exit Interview. Painful. I worked so hard. Treated like scum. Discriminated. Where do I start with this Exit Interview form? Part of me has forgotten the specifics. Those hurt. one day i’ll be ready
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How I am feeling today: A little less overwhelmed with fatigue. A lot more overwhelmed by anxiety. I’m having waves of panic A tad hopeful per my husband’s comment (I do appreciate this honesty), “The swelling in your face has gone down significantly. Really. You no longer look like your neck is being swallowed by [...]
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As more days pass with taking 2.5mg of Prednisone, after 9 months of taking 10-15mg, the worse my leg muscles are feeling. This is my reminder for why I took Prednisone is the first place – I have a myopathy or myelopathy of unknown origin. Prednisone seemed to be the only thing that helped. It [...]
Filed under: Uncategorized | Tagged: chronic pain, doctor patient relationship, Prednisone | 4 Comments »
Based on the timing of this post (thanksgiving Eve), it would be quite appropriate for me to write graciously. But I’m not. I’m optimisitic but not cheerful. Instead, I am starting my “What to expect” series for Prednisone Withdrawal. Why stop the long-term use of Prednisone? The prompt for me was that I’m still no [...]
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Can withdrawing from Prednisone cause swelling in my feet? I’m wondering because the swelling has worsened and is equal bilaterally. Without my cane, I’m not sure how I would have gotten around today. The swelling means I can’t move my toes or ankle so I can’t walk heel to toe. I was pretty shocked by [...]
Filed under: Uncategorized | 3 Comments »
