Wannabe Radioartist

When you’ve had 13 vials of blood taken, a gallium scan, thorough neuro exam, and 3T MRI, you hope to know something.  Anything!

C’mon – there MUST be some sort of results somewhere.

When none of your doctors are returning your calls, you realize they are still working on your puzzle pieces, but you want them to tell you something.  Now!  PLEASE!

When all I have are images from my recent MRI along with my past MRIs, I play wannabe radiologist.  I pull all memories I have of Anatomy & Physiology class, Neurology class, and my other college Bio courses to find any clue, any information, any thing that can help me feel like I know what’s next.  I’ve played with the color lookup tables, and this is all I’ve got to show for it.

My designer brain. More like Radioartistry since I have no clue what I am doing.

So, please, excellent doctors of mine – call me.  Even if it’s just to tell me you won’t know anything for a few more weeks.  ‘Cause what I think is my optic chiasm sure seems to be showing increased signal intensity and I want to know what’s up.  And, http://imaging.consult.com/ is freaking me out.

Thank you very much,

Patient Q

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5 Responses

  1. I’ve been thinking of you (and owe you an email!!). I ended up having a brain MRI on Saturday too — and on a 3T machine, no less. I feel like I’m following in your footsteps all the way! (Oh, and I got my colonoscopy biopsy results — polyp was benign and no real answers from the other biopsies either.)

    I had my MRI at a hospital and was told that my doctor should have a report in two days. I wasn’t sure whether he meant two business days, but I definitely plan to call my internist about it tomorrow to see if she got it. Have you called the facility where you had the MRI and asked to have a copy of the radiologist’s report sent directly to you?

    I’m glad you were able to get a copy of your MRI. I got one of mine too! Unfortunately, the software the hospital used is less intuitive than the software I got with my last brain MRIs, and I haven’t figured out how to get full-sized images.

    I hope the fact that they’re taking awhile to get back to you just means that they think they might have some answers and want to get other docs to help consult or something before they call you.

    Hang in there!!

    • :)

      I do feel that the wait is for a comprehensive set of results rather than pieces here and there. But still – I’m ready for some info!

      I wish you all the best w/your tests!

  2. That’s gotta be incredibly frustrating! I hope you get your answers really soon.

    • Thanks, WS. Indeed it is. Indeed it is.

  3. It must be so frustrating to not get any kind of answer to all of your questions.
    A lot of doctors seem to have a problem to admit that they don´t exactly know what´s wrong and need some time to find a clue.
    I´d rather have them say “I need a few more days to find out what is wrong,because I have to to some research” than not say anything at all.
    Even a doctor can´t know everything right away.
    So why can´t they just admit that they to have to do research and get informed in some cases?

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