I’m a little giddy and a little in shock. I can stand on my right leg and lift my left leg. My pain is reduced. I don’t feel the same tightness in my left leg. My right arm feels stronger. The right side of my neck is less swollen, though it is tender to the [...]
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I have my own Queen at work style – not super dressy but not casual either. I’ve been told I have a talent for accessorizing. I have good hair. I have a dedicated makeup and hair styling regime. I work at it. I use the best tools and products I can find to give me [...]
Filed under: Uncategorized | Tagged: undiagnosed chronic illness, undiagnosed disease | 1 Comment »
No wonder reality is often described as harsh. My dental hygienist, looked through my chart and asked some questions about some notes my Dentist had. She asked some questions and I answered candidly. She shared with me that her husband lives with an undiagnosed neurological condition. Seventeen years ago, he began to show symptoms including [...]
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You look so vibrant! I love your eye makeup. Is it new? You’re back to your old self. It’s great to see you so happy again. What’s the good news? You seem to be doing so much better. Why have I heard these comments this week? I am 100% confident that I will not find [...]
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Each day is a chore, each night is a trial I wanna be somebody else for awhile Somebody Else for A While – Pat McCurdy I’ve been thinking a lot about who I would be and what I would be doing if it wasn’t for my illness(es). And, yes. I’d like to be someone else [...]
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The 13 vials of blood came back negative for every antibody and every thing else tested except for my ANA, which was low. It still amazes me that I definitely have a goiter on my thyroid and yet not a single antibody to prove it’s there. I am atypical they say. Seems to somewhat amaze [...]
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When you’ve had 13 vials of blood taken, a gallium scan, thorough neuro exam, and 3T MRI, you hope to know something. Anything! C’mon – there MUST be some sort of results somewhere. When none of your doctors are returning your calls, you realize they are still working on your puzzle pieces, but you want [...]
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Thank you for sharing the slideshow, Dr. Chwistek. I often wonder why many physicians I’ve seen seem to lack empathy. Particularly the docs who have blown me off completely. I’ve learned that the doctor-patient communication success is all on me. If I let anxiety or other emotions overwhelm me, a doctor isn’t going to reel [...]
Filed under: Uncategorized | Tagged: doctor patient relationship, empathy, undiagnosed chronic illness | 7 Comments »
