The Queen of Optimism

My surgery today was much better than I expected.

My ear - marked with an X to make sure no one screwed up.

I’m feeling pretty well and there have been no complications that I can tell.   Three years ago, with the same surgery, I was in very rough shape.   Best of all, Dr. ENT was very kind to me.  Pre-operatively, she let me know that she and Dr. PCP had a rather lengthy conversation about me yesterday, “And we’re going to  work on getting you better.”

I was touched by her statement and wonder if that is why I woke from anesthesia with burning tearful eyes.  I wonder what I said to her once the anesthesia kicked in.  Dr. ENT did tell my husband that she told me everything she told him once the procedure was done but didn’t think I’d remember because of the amnesia effect of anesthesia.  She’s right.  If I was that emotional, hopefully she is not reconsidering her stance that I am not crazy.

If you haven’t had surgery in the past two years or so, you may not know that you are now written on with a marker to make sure the surgery is done on the correct body part.  Please see photo above for an example.  Since all of my problems are predominately on my left side, I am considering tattooing the entire left side of my body.

Next steps

My next steps are to put the pressure on Dr. PCP and Dr. ENT about what to do next.  they both believe I have an autoimmune disease component to my myopathy, ears, etc.  Who do I see about this.  I asked the practice manager at my PCP about hiring Dr. PCP to coordinate my care.  The manager stated that Dr. PCP feels she can do this during regular practice hours and visits without me contracting with her for additional services.  We’ll see how things go.  I’m willing to make arrangements so that she can spend dedicated time working on my particular case.  It’s been a year since I began struggling more than ever before.  It’s time to move this process along.

UPDATE: A few minutes after I published this, I fell.  This is the third time I have fallen in two weeks.  I had gone a few months without falling.  I know one aspect of what makes me fall.  I can not flex my left foot so it drags on the ground.  Sometimes, the foot interferes with my pant leg or shoe making me unsteady or tripping me.  ugh.

Thank you for reading!  Yes, indeed, your comments are encouraged.

Filed under: Uncategorized Tagged: | adult chronic otitis media, autoimmune, doctor patient relationship