Which Way to Easy Diagnosis Street?

If I had to predict the outcome of today’s three appointments, I would have been spot on.  diagExcept for a few minor details.

PRIMARY CARE DOCTOR

  • Removal of sutures
  • Skin biopsy results:  indicates a need to watch for and possibly biopsy other moles
  • B-12 injection

HOSPITAL FOR ARTERIAL DOPPLER

Technician said:

  • Blood flow looks good
  • Didn’t see anything abnormal
  • My hope for a breakthrough in my diagnosis and treatment – deflated.

OTOLARYNGOLOGIST (EAR, NOSE, AND THROAT DOCTOR)

  • I still have fluid in my left ear
  • I should get a tube in my left ear (tube #13)
  • Doctor ENT completely forgot and does not acknowledge comment at last surgery (2006) “It was a lot worse in there than I thought”
  • Doctor ENT thinks I should see a specialist at University Hospital for my other ailments.
  • After I told Doctor ENT that I did see a Neuromuscular specialist at University Hospital she suggests I see an Autoimmune or Endocrine Specialist at University Hospital.
  • Doctor ENT recommends I go back to Neurologist #1 with my muscle biopsy results.
  • I did not have a hearing test but Doctor ENT said, “Your hearing is worse, isn’t it?”
  • Doctor ENT also said, “Has anyone considered a possible autoimmune disease that may link everything together including your ears?  You’re pretty young to have all of these problems.”
  • My surgery is scheduled for October 20.  Last time, I was down for 4 days afterward.

SUMMARY

I am not really comfortable with getting surgery #13 based on the weakness of my ear drum and Doctor ENT’s previous comments over the past few years about future ear surgeries for me.  However, I am done questioning doctors so I will take the plunge.  After leaving the hospital today, I held back tears.  Even though I had my doubts that I’d finally be on Easy Diagnosis Street, part of me really wanted this to be the case.  My leg pain increased after the arterial Doppler that included blood pressure cuffs that tightened around my leg in four places.  Part of me does want to go back to Neurologist #1.  I’m going to do my best to give up on a diagnosis for my leg, etc.

Quello che sarà, sarà.

Of course, please do comment.

2 Responses

  1. *hugs* Wow, you’ve got a lot going on. I’m sorry the arterial doppler didn’t turn anything up. It’s possible that something subtle will turn up when an MD looks at the results that the technician didn’t notice … maybe? I was really hoping you’d get some answers from that. Although I wasn’t sure it would lead to an answer you’d really want. :-( I do totally understand the desire for a diagnosis, ANY diagnosis though. I’m so there too.

    Hang in there!!

    • Thank you so much! You hang in there, too, k?

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