I am crying a lot. Long episodes of tears and crying in front of total strangers. I’m perpetually on the verge of tears because I’m at an incredibly frustrating point – Why can’t anyone figure out what’s wrong with me? I have wonderful e-friends who are in similar situations but in the every day world, [...]
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No one would deny that chronic illness changes a person. I am finding that the process of getting diagnosed is changing me. Especially when I look back at some more emotionally charged posts. My frustration is manifesting differently. I’m eager for a diagnosis but am apathetic about what it is. I just want to know. [...]
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Over the past several months, I have had doctors tell me “when you hear hoofs, you look for a horse not a zebra.” In other words, look for the typical possible problems because there’s not likely to be a zebra among horses. I think things have changed. It became clearer to me at some point [...]
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“Your eyes are like those of someone who is 80 years old, not 36. Your blood vessels are dilated and tortuous.” I’m not ready for this. I didn’t do a ton of research before my fluorescein angiogram today. In fact, I only figured out how to spell fluorescein last night when I did a brief [...]
Filed under: Uncategorized | Tagged: fluorescein angiogram, ophthalmology, tortuous dilated eye blood vessels, undiagnosed chronic illness, vascualar problems | 1 Comment »
My husband couldn’t believe how happy I sounded as I recounted the less than happy Endocrinologist appointment. I’ve grown to be a better faker. I really want to be positive on behalf of my friend, Heather, who had a thyroidectomy today. I need to let out my frustration. I’d say that I just initially laughed [...]
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Even though I consider myself to be optimistic, I’m not one of those “You can be anything you dream of being” kind of Oprahesque people. Why? Because it’s not possible. I will never be a ballerina and my husband has no shot at being an NFL star. However, I do believe that because of the [...]
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My husband’s pet name for me has become “Sicky Sickerson”. I’d prefer Cupcake. Two weeks in the life of a person with chronic illness like me seem somewhat more eventful than the lives of the Welly Wellersons. Over the past two and a half weeks I have: Had a surgical procedure – an open muscle [...]
Filed under: Uncategorized | Tagged: doctor patient relationship, muscle biopsy, muscle weakness, myasthenia gravis, ophthalmology, thyroid | 3 Comments »
