Visible illness

Search for autoimmune and chronic illnesses and your results inevitably lead you to the concept of invisible illnesses sometimes called ICI (invisible chronic illness) or CCI (concealed chronic illness) and how a person with one is expected to function normally because no one can tell they have a problem.  I get it, really.  I long [...]

You’re right – I can’t handle the truth.

I am reading this book, The Chronic Illness Workbook by Patricia A. Fennell.  I’m a straightforward kind of gal and appreciate that trait in others.  I just don’t know if I was prepared for the stark realities presented by this book.  Firstly, it is comforting to read a description of what it is like to [...]

It’s (not) a leg thing

When I was 15 years old, I was was running around the track at school and fairly suddenly, my legs began to tense up and hurt.  I could not run anymore and needed help to get from the track to a nearby bench.  After some rest, I could walk with a limp.  My parents did not [...]

Endless highway

For a few weeks, I feel like I’ve been handling things pretty well.  I’m back on the endless highway. I think I handled it pretty well when the Endocrinologist told me that the neurologist was wrong when she said that my thyroid was the cause of my leg problems and that I have signs of an upper [...]

Atypical

I’ve always felt like I am different from other people.  I can’t exactly explain what has made me feel like I’m unique, but I am learning some concrete examples that do set me apart.  Unfortunately, these examples don’t include some sort of phenomenal intellect or other stellar qualities.  Instead, it’s my body, how it functions, [...]

Sjögren’s one hell of a nice guy

Oh, not Mr. Sjögren who discovered the syndrome, my dentist who shared this info with me.   He emailed this to me because he cares!  If only my dentist could diagnose autoimmune and neuromuscular disease.    He’s not sure about the diagnosis I got form the rheumatologist regarding mild Sjogren’s.  My mouth is “juicy” not dry.  Through [...]

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